▲ 17 ▼ Back in Hospital Again… (aussie.zone) submitted 1 week ago by Zarobi@aussie.zone to c/chronicillness@lemmy.world 2 comments fedilink hide all child comments cross-posted from: https://aussie.zone/post/34581678 Medically concerning but also nothing
[–] Broadfern@lemmy.world 5 points 1 week ago (1 child) Can’t speak to the others but ME/CFS is a special type of hell when you get a small remission period so Nobody believes you, You’re expected to push past your limit and It’s extra awful when it comes roaring back like a freight train to the face from stress or a virus or just because screw-you-that’s-why I’m sorry you’re dealing with this OP hopefully you catch a break permalink fedilink source hideshow 2 child comments replies: [–] Zarobi@aussie.zone [S] 4 points 1 week ago Yeah that's a big frustration… I'm on disability, but people sometimes say, hey look you're getting better! Go get a job! But what they don't see is I can only do 3 small or 1 medium thing per day. My definition of small and medium probably being very conservative: a doctor's appointment is extra large, a 15 minute walk is medium, eating breakfast is small. And I need alternating days off where I can't do literally anything. And I'll randomly get put down and can't get out of bed for a month… No job would take me lol But this hospital visit was mostly about random severe hyper-POTS flares. My blood pressure keeps hitting 200/170 from adrenaline dumps. Hopefully someone gives me another magic pill soon before I pop like a leaky balloon lol, the hospital just sent me home permalink fedilink source parent
[–] Zarobi@aussie.zone [S] 4 points 1 week ago Yeah that's a big frustration… I'm on disability, but people sometimes say, hey look you're getting better! Go get a job! But what they don't see is I can only do 3 small or 1 medium thing per day. My definition of small and medium probably being very conservative: a doctor's appointment is extra large, a 15 minute walk is medium, eating breakfast is small. And I need alternating days off where I can't do literally anything. And I'll randomly get put down and can't get out of bed for a month… No job would take me lol But this hospital visit was mostly about random severe hyper-POTS flares. My blood pressure keeps hitting 200/170 from adrenaline dumps. Hopefully someone gives me another magic pill soon before I pop like a leaky balloon lol, the hospital just sent me home permalink fedilink source parent
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