cross-posted from: https://aussie.zone/post/34581678

Medically concerning but also nothing

you are viewing a single comment's thread
view the rest of the comments
[–] [S] 4 points 1 week ago

Yeah that's a big frustration… I'm on disability, but people sometimes say, hey look you're getting better! Go get a job! But what they don't see is I can only do 3 small or 1 medium thing per day. My definition of small and medium probably being very conservative: a doctor's appointment is extra large, a 15 minute walk is medium, eating breakfast is small. And I need alternating days off where I can't do literally anything. And I'll randomly get put down and can't get out of bed for a month… No job would take me lol

But this hospital visit was mostly about random severe hyper-POTS flares. My blood pressure keeps hitting 200/170 from adrenaline dumps. Hopefully someone gives me another magic pill soon before I pop like a leaky balloon lol, the hospital just sent me home

  • source
  • parent